Monday, 22 August 2011

No.9 - Hi ho, hi ho, it's off to OT we go........


(But, before I post this next blog. A bit of housekeeping is needed. I didn’t click all the right icons to activate my blog to receive ‘comments’. I’m a little ‘IT Challenged’. I’ve now done that, I think, so please comment-away. I hope you’re enjoying the ride so far. It’s surprisingly emotional and raw, reliving an ‘interesting’ time in my life. Be patient, there’s more to come. Oh, and with a degree of trepidation, I’m now on facebook).
....more accurately, it’s off to OT – I go. We had a couple of no-shows this morning. It appears I’m the only starter. It’s something I’ll need to get used too. When it comes to Quads, some days good, some days are bad, some worth facing, others, are just all too hard to get started.
Late, the previous evening, I quizzed one the nurses about the role of an ‘OT’. I was advised an Occupational Therapist, is a University Graduate and has a myriad of roles to play in rehab. In my case, they basically help people recover from injury and regain their skills. Sounds exactly the direction I need to be heading in.
My ready, willing and able ‘pusher’, Julio (the ‘J’ in Julio’s name is pronounced ‘H’ as in, Julio Iglesias, the much loved and swooned-after Spanish singer who sold over 300 million records), was on the job 15 minutes ahead of our agreed time and a big friendly smile on his dial to match.
Ello Mister Brad. Are you ready?
I could come to like this young chap.
Let’s hit the road Huleo - my main-man.  I’m in your capable hands. I bounced back with, in my best Spanish accent of course.
No Sir. I’m sorry Mister Brad we must stay on the path, ‘at-all-times’. If I’m being seen pushing you down the road, or holding you up in my hands, I have been told - I am losing my job. And then Mr. Brad, I am not able in helping you to get better. So, we must stay on the path, sir, ’at-all-times’, sir, and no holding you in my hands, sir’” he said very apologetically but with a tone of correctness and authority.
God, what could this one develop into once he learns the Queens-English, gets a Qualification, buys a house, gets married, and, starts a family. As it turns out he had the latter 2 boxes already ticked-off. The trip down to OT was a pleasant change. I hardly had to say a word to hold a conversation. Julio opened up about the lot, especially his wife and kids.
We had obviously struck a bit of a language barrier early here. Fair enough. No complaints. I’ve been fortunate enough to have done a bit of travel ‘os’ with Christene, and quickly became respectful and patient of people trying to understand what I was saying and, visa versa. Think about it. I don’t know what your Spanish is like. But let me tell you, he speaks English (my ‘first’ language) a hellava lot better than I speak Spanish. I am going to have to be a little more precise, and a little more proper with my delivery of instructions. And keep the slang down to a minimum. Not to mention, a display of a little more patience (not my best personal trait and something I’d been reminded of on numerous occasions).
The OT’s area was on the 1st floor of the building adjoining the gym. We rolled down a corridor and entered a room set-out like an Arts &Crafts area. There were about 8 or 10 long trestle-like tables, each scattered with a variety of differing items. The one young lady in uniform came over and said she was just finishing up with a patient and she’d be with me shortly. Well, I was early. She told Julio to be back in an hour to pick me up. Julio deposited me at a vacant table that had half a dozen boxes on it. The box I was closest too had several material zippers in it together with some Velcro strips, buttons and needles and thread.
5 minutes later the young lady, all of about 23 or 24 years of age, came over and introduced herself as Kylie, declaring that she was my OT and here to help me with some of the basics.
“Right Brad what would you like to start with first?” she said in a very soft, very caring voice.
“To be honest Kylie I’m embarrassed to say that up until last night I had no idea what an OT was and what was there area of expertise.” I replied in an equally sheepish voice.
She spent the next 10 minutes explaining the role of an OT in the rehab process. She explained that, if in my case, a Quad, he/she could manage to do the some of the simplest of tasks such as dressing, feeding and washing themselves, life after Hospital would be so much more fulfilling and assist enormously with ones self-esteem. I know they keep saying to me it’s early-days, but I had no intention going home without at least being able to do my basic personal hygiene requirements. But let’s face it, so far, in these ‘early-days’, I couldn’t even wipe my own backside.
I established that Kylie was indeed just 23 years old and this was her first year out of College after qualifying. She had a pretty face, wore no make-up, her hair was what my girls at-home called, ‘some-up-some-down’ (God, how I miss the girls) and the most amazing unblemished white alabaster skin. She didn’t look the sporty-type. I wondered what her interests were outside of hospital-life. I always look for something in someone where we might have common ground, it makes it easier for me to communicate.
She took the lead. “Why not start right here (that box of haberdashery items). We have zippers, a shirt-front with buttons and button-holes, Velcro belts, shoe laces, an old T-shirt and a pair of socks. Here’s as good a place as any.” She announced. “Show me what you can do?”
Julio had already left me with one of my arms on the table, a good start. I tried to crawl and wiggle my fingers towards the box. But things weren’t working at all. Kylie pulled out a zipper with a large key-ring loop attached to the top end and placed it in my lap. “See if you can manage to unzip the fly.” she whispered gently to me, although we were the only two in the room. I tried, I swear I tried, boy how I tried. I took a couple of deep breaths and focused all my energy on my fingers and hands. Nothing, absolutely nothing. I exhaled loudly in frustration. “Let’s go over here and try this.” She said calmly. On this table there were board-games. Chinese Checkers, Draughts, Solitaire and even Chess. She pulled the Draughts board over which was already setup and ready to play. I may have played only a couple of games of Draughts in my entire life. Dad had taught me Chess from the age of about 10 or so and I enjoyed the challenge of tactically taking an opponent’s main pieces from the board and gaining the upper-hand. I explained that to Kylie, but she wanted to start with the Draught pieces, explaining that they could be slid across the board rather than have to be picked up and repositioned. She was a smart young OT. Within 15 minutes of meeting her she had established my present limitations and put me in a position where I’d have more of a chance of achievement rather than failure. Very perceptive, for one so young. I’ll bet she got several High-Distinctions at Uni. She positioned both my arms alongside the board. “OK, I’m white, I’ll go first.” she said. Now back in the Ward I’d had some indications of movement in my little and ring-fingers. That movement, besides, my ‘old-fella’ tricks was all I had. And I didn’t think it appropriate to ask her to pull down my trackies and I’d take her on with Mr. Wobbly. We’d only just met. I think I figured it out. I carefully leant over and my first move came swiftly and surprisingly accurately considering. Courtesy of me pushing my piece with my nose in a diagonal direction I’d done it – pure genius. “Right then, your go.” I mumbled. The problem was that now having played a brilliant tactical move, I was lying face-down on the board game. A little unorthodox maybe and probably a move shunned upon at the World Draughts Championships, but I’d done it. She got up, complimented me on my ingenuity, declaring she’d never seen Draughts played quite that way before. From behind me she put her arms firmly but gently around my chest and pulled me back up into normal seated position. “No, not quite Brad, we’re here at this very moment trying to ascertain exactly what we have to work with, what you’ve got use of, you’ve got to get to you to use your hands.” She’d obviously established there was nothing wrong with my problem-solving capacity. Thank goodness I didn’t dare suggest my new ‘trackies-down’ version of Checkers. “OK, let’s move over to the other table and try this.” The table had crayons, markers, pens, pencils and great reems of butcher-paper on it. She positioned my chair as close to the table as possible and locked the brakes. Then from a table adjacent to ours she retrieved a box of moulded plastic shapes with Velcro tags attached. She fiddled around with a couple of versions and selected what she thought might suffice. The plastic mould fitted snugly to the inside of my hand and was secured to the back by the Velcro tags. She then weaved a ballpoint-pen inside the shape which gave me a hand with a sort of a writing position. Very clever, if not very mechanical. It didn’t feel like my hand at all. “Now let’s see what you can do.” she asked. With my arm positioned at the top of the writing plinth and piece of paper and pen at the ready, she said let’s see if you can draw a straight line. She was determined to let me achieve at least one task in today’s session. Again very patiently, very thoughtful, very clever. I managed, with the help of gravity to drag the pen back in the direction of my belly until it fell off the table and stabbed me in the leg – didn’t feel a thing. “Very good, let’s do that again.” We went through the same procedure again and again. And, albeit basic, I did feel a sense of progress. “That’s great, try to do the line straighter. Here let’s try a marker.” she encouraged. Again same result, a little crooked but near enough to a straight line. Then, all of a sudden, no warning given I felt a growing anxiety begin to well-up inside, longing for home-life. I wanted to hold Christene close to me, have the kids jump into bed with me and have a wrestle and a cuddle. I wanted things to be a little like they used to be. Embarrassed I turned my head away from Kylie as tears began to flow down my cheeks. I started to cry uncontrollably. Blubbering. Kylie got up and moved my chair over to her desk and pulled a couple of tissues from the box in the draw and moped up the flood. She didn’t even blink at also tidying up my nose, which by this time was running like a tap. How embarrassing. Kylie was a little more 10 years older than Jacqui at home and here she is, a veritable stranger cleaning up a near 40 year sniveling old sook. I didn’t know where to look. She repositioned her chair and sat directly in front of me, took my hands from my lap and held them ever so gently on her lap. 3 or 4 minutes passed without a word exchanged as I managed to compose myself a little. “What brought that on, Brad. Do you know?” again she whispered. I took a couple of deep breaths as she again wiped my eyes and nose. “Kylie, I know I’m a quad. If I’m stuck in a wheelchair for the rest of my life all I want to be able to do is physically hold my wife and children close to me. Is that too much to ask? And please don’t trot out the ‘it’s early days yet’ line.” again I sniffled. “Brad you’re a high-level quad, but your injury is incomplete. There’s hope. You should, over time, gain some shoulder movement, some useful finger movement and I feel some bicep response to assist in lifting and holding things, including your beautiful Family.” she said. By this time I was in the controlled-sob mode. “Kylie, it’s been a big couple of days. I found out 2 days ago that Christene and I are expecting another baby, our 3rd, due mid September, all things being well.” I used the baby-news as the excuse for breaking down like a big-girls blouse. She continued to hold my hands ever so gently. The only person to show such care and gentleness was my Christene. I found myself looking into her eyes as if she were Christene. Am I losing the plot? I think if I could have, I would have leant over and given her a big hug and a kiss. Thankfully I didn’t attempt that. It would have ended up with me careering forward and landing face-first in her crutch – charming.
“ Hey Brad, here’s Julio. Right on time. Are you OK? It’s been a big first session, let’s call it a day, I’ll see you in a couple of days or so, take it easy”
And with that enormously emotional out-pouring of feelings, it was all over. I did feel a sense of relief, a sense of cleansing. Probably just by the sheer volume of emotion that spontaneously left my crippled body. Imagine, subjecting a total stranger to all that. Still embarrassed, I thanked Kylie for her kindness and thoughtfulness. “Thanks Kylie, you’re a real gem, see you soon”.
“Hey Julio, are you ready. Let’s get back to the ward, mate.” I directed. Again, Julio rabbited-on about his family here and overseas all the way back to the ward. I nodded but wasn’t in the mood for a real chat. I felt completely drained and exhausted and found myself yawning several times in transit.
It's amazing just how much a game of Draughts can take out of you!

Tuesday, 2 August 2011

Finally.....we have movement....


After 6 weeks of just lying there in virtually the one position (I say virtually, because if it weren’t for the Surgical Dressers having to roll me every 20 minutes I wouldn’t have moved an inch) there is definite signs of movement. I think?
Directly above our beds (those of us who can’t move), each of us have a 1.2m x .6m framed mirror on a swivel-stirruped bracket. For virtually 20 hours a day, 7 days a week, all you can see is your bed sheets and the various tubes protruding from beneath filling up a variety of bags and bottles ready for emptying, recording and analysis by the sisters.
Should you feel in the mood, or a neighbouring bed-mate feel similarly inclined, you could call on a nurse to angle your mirror to view the face of the person you are talking to, rather than just talk to your own mirror and your own reflection. It also gave you the opportunity to keep a check on the ‘facials’ of your intended conversant.
This morning was looking like anyone of the previous 45 or so mornings I’d endured so far. Just before dawn and the ward started to stir from another restless night sleep, courtesy of me. I would say a few words to the Almighty and ask for a sign (any sign) to demonstrate improvement. I would then do my own thing and try to concentrate on different areas of my body. Generally starting at the head and working my way down. My routine took about 10 or 12 minutes and required an intense concentration on one small area at a time. Now, bear-in-mind, this was my technique and theory, not based on any specific scientific data, just another one of my hunches. I was just about to thank the Almighty for yet another ‘no-show’, when... was that movement in the mirror? I’m sure it was. Not a finger or toe, mind you. But, I’m certain there was movement from down around my nether-regions. Now wait. Concentrate. Let’s try that again. No, nothing. I was concentrating so hard I could feel a headache developing. Stupidly I found myself tearing-up with the reality of it all. I wondered whether I should just fob it off as an over-active imagination and plain wishful thinking. God how I missed the simple things we all take for granted in life – like movement.
Now concentrate again. Breath. Focus. Na, nothing. Bugger it! I’m exhausted.
No wait. There it is again. Under my sheets there is movement. There it is again! You bloody beauty.
“Sister, sister”.... I bellowed.
Moments later a not too pleased Sister Rachel appeared and shooshed-me silent. She told me to keep it down and be a bit more considerate before I woke up the entire Ward.
“What’s the matter Brad?, it’s not even 5.30 yet,” She scolded.
“I’ve got movement. Movement under my sheets, look. Watch this!”
I tried again to prove my point. But nothing. I can’t believe it.
“I promise you Rachel there is movement, believe me,” I pleaded.
“Where?” she asked.
“Down around my groin area, I promise.”
She gave me that ‘nice try, you sick unit’ look, but still she carefully peeled back the sheets to see what I was ranting about. There, for all to see, well, for her to see, was my sad looking catheterised ‘old-fella’ lying flaccid and totally disinterested in displaying any sign of anger, movement or involvement to backup my claim. Not a good-look really. She turned and respectfully replaced my sheets. She could see by the disappointment on my face that I wasn’t trying to pull some sort of childish prank. I was shattered.
“Brad, just settle down. OK, it may have happened, but it’s just a reflex. It’s involuntary.”
“No, no”, I insisted.
“OK then. Show me it wasn’t involuntary. Move the sheets.”
Try as I might. Concentrate, concentrate. Nothing, absolutely bloody nothing.
“Hey Brad, relax. It’s early days yet. If things are going to return back to normal, it takes time. Lots of time. Now quieten down and try to get some sleep or at least some rest.” She said in a consultative manner.
Sister Rachel was one of the good nurses, and, not a bad sort either. God, how embarrassing was that. And I was one of the sane ones in the group. She would have been all of 25 years old and here’s a 38 year old married man asking her to check out his goullies and see what my ‘boys’ have doing out in the paddock during the night. She hadn’t quite got back to her nurses-station when there was movement, again, at my ‘station’. Fair-dinkum. I wasn’t game enough to call out again so soon. Then again, was that movement? I decided I’d have to hone my technique so as not to have another embarrassing false-start. And destroy my credibility.
I did have that supposed ‘so-called’ reflex action on 3 more occasions that morning, and, yes I was trying to get some action. Reflex action – my bum. I’m sure things are starting to work again. I decided to have lunch on my own. I needed some clear thinking time. Even the guys wondered if I was OK or if there was something wrong. During lunch I went over and over in my mind what may have triggered these ‘reflex’ actions. There was only one common factor, one thing that kept popping-up. Christene. It was when I thought about Christene, my wife of 16 years. My one and only ever true love. I don’t think my thoughts were purely of a sexual nature. In fact I’m sure they weren’t. They were comfort thoughts, familiar thoughts, trusting thoughts, dependable thoughts. I was indeed a very lucky man, at least on the marriage-front. Christene would be here after lunch and I’d attempt my new ‘trick’ in front of my provocateur. Sure enough, just like clockwork Christene arrived at the Ward about 1pm.
I was so pleased to see her. She’d believe me. I told her the story and although she listened, she wasn’t really listening. She had something else on her mind. When I finished she said we need to talk. She darl, go ahead, what’s wrong? Are the kids OK? Yes, yes she replied. Let’s see if we can talk outside. She went to the nurses-station and asked if they could disconnect several of the tubes, leaving just my catheter in place with a bag strapped to my leg. They wiggled a pair of tracksuit pants on me on put on a fresh sloppy-joe, transferred me into a wheelchair and strapped my chest to the back. 10 minutes later we were sitting on the grass strip just outside the Ward. Boy, how nice did that feel. The sun on my face, some fresh air and my wife holding my hand.
“What’s up darl?” I said
“I’ve got some news. I mean we’ve got some news.” She said, not quite looking me in the eye. She could see I was about to prompt her when she said. “I saw David Little yesterday.” “Oh God no, are you OK, is everything OK?” David Little had been our family doctor since we arrived at Avoca Beach 7 years ago. “Yes, yes. Just that he did some tests yesterday, and......, well......I’m pregnant.”
It must have been the look on my face. There was silence for the next 30 seconds. I looked at Christene, her eyes had begun to well with tears. What does one say? Six weeks ago my life, our lives, and those of our family had taken a drastic turn. Here am I in PHH. A diagnosed C3/4 Incomplete Quad, still heavily medicated, still even having trouble just breathing. Told I would never walk again and the future prospects still too early to accurately predict what my long-term health position could be. Two young girls at home and a new baby on it’s way. “How pregnant are you?” I asked as gently as possible. “About 8 or 9 weeks, probably from around New Years Eve” she said.
“How do you feel about it, darl. You’ve got your hands pretty full at the moment. You got the very real prospect of having to take care of me for as long as I’m around. The 2 girls. And now....” I paused.
“I’ll be fine as long as you’re OK with it. We got a lot of good friends and family fairly close at hand. If you’re OK, we’ll manage.” She said.
I needed to take a minute or 2, to let things sink in. Wow. That came out of left-field. How the hell did that happen. I mean I know how it happened I just thought - how the hell did it happen? We’ve got friends who have tried for years to have children, without success. It appears I only have to have a few Bundy’s ‘n Coke, a bloody good romp and kabam – bullseye.
By the look on Christene’s face there was only one answer she wanted to hear. “Yep darl. I’m happy if you’re happy. But, with one stipulation. We have to get tests done to find out that all is fine with you and the baby. If you know what I mean. Ask Dr.Little if we can have an amnio-centesis done. We can’t risk having any problems with another member of the family. I’m going to be a big enough handful. Better to be safe than sorry.”                                               (An amnio-centesis is performed in the out-patients area of some hospitals. A small amount of fluid is taken from the sac and checks for any abnormalities in chromosomes and fetal infections).
We hugged and kissed each other and both cried for a good 5 minutes. I’m certain they were tears of joy.
“And one other thing, darl.” I added
“What now?” she gasped
“If everything is OK. Let’s find out the sex of this one. No more surprises, please.”
“Yep, deal”, she chuckled.
Christene left within 20 minutes of getting me back inside the Ward. She had the 2 hour drive back home. Gee, I hope she’s going to cope.
To be honest I was pleased to be back in the Ward. I had a lot of thinking to do. And a very aggressive rehab program to rev up. If that wasn’t a motivating moment, I don’t know what was.
What a day! Hey, and guess what. There was movement down below again. I told you so!